The Patients Network for Medical Research and Health EGAN is an alliance of both National Genetic Alliances and European disease specific patient organisations with a special interest in genetics, genomics and biotechnology. Especially, but not only, genetic disorders are represented within EGAN.
EGAN is working for a voice in research and health policy and seeks a world in which genetic and other serious diseases are understood, effectively treated, prevented and the people affected supported.
EGAN.eu is our corporate website. In addition, we host www.biomedinvo4all.com: a site set up to empower patients and their organisations for their active role in the 'Roadmap to treatment': biomedical and health research and related policy issues.